Receiving a diagnosis of dementia is life-changing - for the person living with the condition and for their loved ones. It often brings a mix of emotions: confusion, fear, grief, and, for many, a sense of urgency to understand what comes next.

But here’s the truth: a dementia diagnosis doesn’t mean life stops. With the right information, support, and planning, individuals and families can take steps that empower independence, preserve quality of life, and build a strong foundation for the journey ahead.

Step 1: Take Time to Understand the Diagnosis

Every type of dementia - whether Alzheimer’s disease, vascular dementia, Lewy body, or another form - has different symptoms and progression patterns. Understanding the specific diagnosis can help with decision-making and planning.

📌 Ask your healthcare provider to explain the diagnosis clearly and in writing. Request details about what to expect, how it might affect daily life, and what support is available.

Step 2: Begin Conversations Early

Talking openly as a family about the diagnosis can ease fear and prevent future misunderstandings. Involve the person living with dementia in decisions while they can still clearly express their wishes.

Discuss topics such as:

• Daily routines and what support might be needed

• Medical and legal planning, including power of attorney

• Living preferences - staying at home, in supported housing, or with family

• Communication preferences, such as how they'd like to be spoken to or helped

These conversations may feel difficult, but they give everyone a voice and create a shared understanding.

Step 3: Build a Circle of Support

You don’t have to do this alone. Start identifying your support team early. This might include:

• Family and close friends

• Healthcare professionals and memory clinics

• Local dementia organizations and community support groups

Many people find it helpful to appoint a lead care partner or family member to help coordinate care and communication. Digital tools can assist here. The Elli Cares app, for example, helps families stay connected and informed, even from afar. It offers shared reminders, check-ins, and visibility into how a loved one is managing day-to-day.

Step 4: Take Practical Steps Now

After a diagnosis, there are several practical actions that can make a big difference:

• Get legal and financial plans in order while the person is able to participate

• Create routines and visual cues to support memory (e.g., labeled drawers, reminder notes)

• Review safety at home, including medication management and fall risks

• Start small health habits - good nutrition, hydration, exercise, and social engagement

Apps like Elli Cares offer medication reminders, hydration and mood tracking, and safe navigation features, giving both seniors and families reassurance and structure.

Step 5: Look After Your Own Wellbeing

Being a caregiver - whether now or in the future - can be emotionally and physically demanding. It's not selfish to look after yourself; it’s essential.

Seek out carer support groups, take breaks when needed, and share the load where possible. You’re not alone in this journey.

Moving Forward with Support and Hope

While dementia is a progressive condition, there are many meaningful ways to support a good quality of life for years after a diagnosis. With the right resources, daily routines, and a compassionate circle of care, life can still be rich, connected, and full of small joys.

Take a look at Dementia UK's After a Diagnosis checklist for actionable next steps